Good morning! Hopefully today will be a better day for our Madeline.

Yesterday was difficult. Trey and I noticed Madeline was not looking good and breathing heavily...so we requested more blood draws, only to find out Madeline's bicarb had dropped to a 12. She was acidontic at this point. So i called the metabolic doctor on call to come to our room...because i wasn't about to mess around with these low levels. Madeline could barely keep her eyes open due to the lethargy she was feeling from her acidontic state. We had doctors and nurses running around changing fluids and giving her meds to try and raise these levels. I hate to think about what would have happened had we not requested these blood draws. ALWAYS go on your instinct as a parent. Never doubt it!

This morning, Madeline's bicarb is at 18. Much better than before. She seems to be in less pain than yesterday. We are hoping to get her bicarb in the 20's and be on our way to a recovery.

Thanks for all your support and love!