Madeline's pain was off and on today...there were bad moments and tolerable moments. Madeline's bicarb was at a 27 this morning which is great! Her pancreatitis is full blown at the moment and is really hard for her to tolerate. Some good news is 3 of her doctors are going to meet and discuss "how to keep Madeline home more...". I think they are going to try to adjust some of her meds and diet and hope it makes a difference.
Being apart from each other is hard on us especially during the holidays. But there are families that are apart much longer than we are, and we feel our situation is not as bad as it could be.
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