Madeline's Blood Work

What a glowing report back from Maddie's blood work. Her blood levels are the highest they've ever been (9.9) and that means no I.V. iron treatments. Yeah! Her kidneys also are continuing at the same levels and are not seeing any reduction in functioning which is a great and welcome bonus. As always, thanks to all the tremendous doctors at Dallas Children's for all their work!!!

Homebound School Going GREAT!!!

Homebound school is going great for Madeline. She is so lucky to have such a wonderful teacher in Mrs. Robyn Baker. Her and Madeline are official buddies and Maddie's learning has accelerated tremendously. Thanks Mrs. Robyn!!!!

Great check ups!

Madeline had many check ups recently. They all went really well!

The first one was her nephrology apppointment. Her kidneys haven't gotten any worse since her last check up a year ago. This is great news! We want these kidneys to hang in as long as they can.

The next appointment was her hematology appointment. She had a higher blood count she's had in years. So that is also good news.

Her growth is finally stabilizing and she is gaining weight.

Madeline is enjoying her homebound teacher and doing great!

Yay for positive check ups!

Madeline starts homebound program

Madeline has started the homebound program through the Lakeview Elementary. She is doing great! A teacher comes 1 hour a day 4 times a week. Madeline has been doing well so far, and hopefully she can have a healthier Fall/Winter season than last year.

Doing good

Madeline is doing well today. She is having some minor pain here and there, but a definately improvement from before. She has had a few feeds and done ok. We are going in the right direction so far! We have great nurses and doctors as usual, and a room with a great view of Dallas that is awesome! Maybe home bound soon.

Doing okay

Madeline is doing a little better and is on less pain medication today. We are going to try some night feeds and see how that goes. She is spending her time reading and playing the Wii.
So for now we are focused on pain management.

Back in hospital

Today is July 10 th, Maddie went back into the hospital on Friday. She is having her normal tummy pains. Her blood work looked pretty good so we are treating the pain for now. We will continue to update...
Let's hope she gets out before her birthday!