Madeline is home for now and feeling pretty good. We are enjoying the family being together again!

Madeline is having a great day and may come home this weekend. She isn't having pain and her blood work looks good. She is taking some feeds and eating a little without tummy pains.

In Hospital

Madeline has been in the hospital for a few days now. We were no longer able to treat her pain at home and it has turned into full blown pancreatitis now.

As a family, we are very thankful for the moments we get together anymore. We are not together very often, and it is very difficult. The doctors are not coming up with any answers or new ideas, so Trey and I are having to do this on our own for now. The only thing we can do is hope that this pancreatitis goes away and gives us time at home.

We are not and will not give up. We are just missing each other so much and wanting Madeline to be able to live a life outside the hospital.

We will update with any progress. Madeline's pain is better today than it was yesterday. SO this is a positive.

Thank you to my Mother, Lee and Jacque for being our saving grace and helping so much lately. We appreciate everything. We also are thankful for all the support from other family members and friends.

Madeline is home for now. Her pain never got worse and they sent us home with some pain meds to try and manage it from home for now. If it gets worse, we know where to go!

Doing well

Madeline's tummy pains have not gone beyond a "1", which is on a scale of 0-5. So things are better than usual and we may not be in long if things stay like this. She is eating a little and taking feeds.

Madeline went to the Teddy Bear Clinic today at Children's. They have a wonderful set up with doctors and nurses that pretend to treat the teddy bear the kids pick out. They even have a pretend form to fill out when we bring our teddy bear into the ER. They get IVs, cat scans, sugery if needed, and even a blood transfusion if the teddy bear needs it. It is such a great way for the kiddos to understand what they go through. Madeline had a great time and her teddy bear, Sandy, had a broken leg. Sandy got surgery and feels so much better now!

Anyways, hopefully Maddie will continue to do well and come home soon!

Hanging in

Madeline is about the same today. Her blood work is still normal. Her tummy pains are a "1" on a scale of 1 to 5. SHe is still able to take some of her feeds. This is a good sign that she can tolerate them. Hopefully she will continue to be able to do this. It isn't likely, but we can always hope. She is hooked up to a morphine PCA, but she hasn't needed to push her button very often which is also a good sign. She is busy this morning singing to Mary Poppins, her all time favorite movie.

Back in...

Here we are February 7th and we are back in the hospital with the same tummy pains. We were able to get a direct admit and bipass the ER which is FANTASTIC! Anyways, I will be updating daily.

Jess